Further information
What is Russell Silver Syndrome?
Erm, well unless you're a trained medic (and from most RSS-ers own personal experiences even then this occupation doesn't save you from ignorance), Russell Silver Syndrome is a genetic growth condition that means besides a number of various issues, we are people of short stature. The name of the syndrome was provided by two doctors - Dr Russell and Dr Silver back in the 1950s.
No one knows (yet) what chromosome/phenotype/genotype that creates such beautiful people. And depending on whether you talk to doctors in the States or the UK - it will take anything from 5 to 20 years to have this very conundrum figured out.
In the meantime, us mortals living with RSS wonder in this thought and teach your average heighters in whiles of the land of the small.
For those of you looking for facts, know this, there is very little medical awareness and information. This is especially so for adults with RSS*. The best sites tend to be the charitable organisations dedicated to children with various growth conditions. Check out the following medical web sites for further information.
* (Hint hint if there are any new medics looking for a research subject - cough cough, please do get in touch.)
Medical resources
MAGIC Foundation » (U.S.A)
Lots of useful information for medical practitioners. A list of printed medical articles on RSS can be downloaded from this web site.
Child Growth Foundation » (U.K)
Downloadable information sheets.
Gene Reviews » (U.S.A)
Medline Plus » (U.S.A)
Generic description of the condition.
E-medicine from Web MD » (U.S.A)
Another generic description.
National Organization for Rare Disorders » (U.S.A)
Description of the attributes of RSS. This is an article that can be bought. Don't know about others with RSS, but certainly don't see this as a 'rare disease'. Sounds horrible.
Wikipedia entry
This web page is provides further generic medical more than anything. It wrongly notes that RSS-ers are growth hormone deficient, which from my own anecdotal evidence from talking to others with RSS, this is rarely the case.
If you are an individual with RSS or a parent with a child who has RSS - please follow this link to the Support page » for a list of groups to contact.
Disclaimer
Please note RSS-People.org is not responsible for external content.
