Tag Archives: ITV

The Real Thumbelina Documentary on ITV1

For those of you in the UK who missed the above documentary on ITV1 on Monday can watch it on the ITV Player.   It follows 4 year-old Amelie and her parents journey to the USA to find out more about Russell Silver Syndrome.

It was great to see both sides of the growth hormone debate and as a non-GH RSS adult it’s always hard to see parents worrying about their children not being ‘normal’ if they don’t have treatment, especially having gone on to achieve everything I hoped to do and more as a person 4ft 4″ height.   It was very much appreciated to see Zillah’s contribution that you can be 4ft -odd and still be ‘normal’.  I hate that term ‘normal’.  People with Russell Silver Syndrome, are that, people, who need that bit of extra support throughout all stages of life.  That said, what would any of us do if we had a child in the same decision and most of us are aware that it is people’s own choice.

Personally I would have liked to see more non-GH adults participating, say a comparison of what life is like as a RSS person who has had GH as opposed to RSS people who have not – but then that could be a documentary in itself.

A more balanced documentary than expected.  Definitely worth a watch and it’s great that awareness of Russell Silver Syndrome has been raised on a mainstream terrestrial channel and to a wider audience.
Here’s the link: The Real Thumbelina Documentary »

(This documentary  is only available to view in the UK and watch-able for another 28 days)

Review: Raised Awareness of Russell Silver Syndrome on Jeremy Kyle

Today’s Jeremy Kyle show on ITV1 features four children with various disabilities to raise awareness of each of their medical conditions.  One of these children is Mollie, a three year-old with Russell Silver Syndrome.   Her Mum, Kaya, chats to Jeremy about what life is like having a young child with RSS.

In an odd sort of way, it’s comforting to hear such a similar experiences that others go through with the syndrome.  I remember hearing about the stories of being ‘failure to thrive’, the insensitive comments and actions from some members of the general public like being touched or picked up like a doll.

Jeremy’s questioning of Mollie’s Mum was frank and sometimes close to the bone, though nothing parents or people with RSS haven’t been asked before. It was great that all parents the chance to promote their child rather than the disability.  And great for generating more awareness of Russell Silver Syndrome in general.

The RSS feature is about 14 minutes in you can watch the programme on ITV Player here until 30th July 2011 »
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ITV This Morning – Russell Silver Syndrome Feature

Thanks to Kim for sending me this over…. ITV’s This Morning had a feature about 3 year-old Amelie who has RSS.  Phillip and Holly talk to her parents, their other daughters and a specialist about living with the syndrome and the type of symptoms that we get.

Nothing we RSS-ers haven’t already heard, but it’s always nice to see the syndrome having it’s profile raised 🙂

Watch the Living With Russell Silver Syndrome feature here »

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