Hello, everyone! My name is Michela Anderson, and like many of you, I have Russell Silver Syndrome. I’m petitioning to the writers of ABC’s “Once Upon a Time” to cast me in the role of Thumbelina. This would be the perfect vehicle to raise awareness for all growth disorders, raise funds for the MAGIC foundation, and show children like us all over the world that no matter how small a person is, anything is possible.
My story is that I was born a month premature at 3 pounds, 4 ounces. The doctors told my parents that I would be blind, deaf, mute, and basically, a brain-dead vegetable. Obviously, none of that was true. I was actually three months old before someone else re-diagnosed me with RSS. My new doctor started me on growth hormone injections at two years old, and I took them every night for eleven years, ending up at 4’11’’. At seven years old, I was diagnosed with precocious puberty, and had to start a monthly regimen of Lupron shots. I stopped taking them when I was 13.
I try and help RSS parents, especially new ones, understand more about the syndrome and what life for me has been like. This is what I tell them: “There is always hope. It may seem difficult now, but it will get better. It always gets better. The most important thing is to stay positive, because it will help you through the journey, and it will help your child in the long run. Keep going, and remember that you’re not alone. There are thousands of us in the world, and you’ll find us if you look for us. Sometimes, the greatest stories come from the tiniest bodies.”
Raising awareness for growth disorders is so important to me, because although I ended up healthy and happy as anyone could be, some children are not so lucky. With so many doctors not knowing the details of these disorders, the children aren’t properly diagnosed, or treated. Other times, the family can’t afford the medicine or specialists needed. By bringing attention to these disorders, we may be able to help children and their families all over the world affected them. If we can get the attention of the writers and convince them this is a good idea, we might just be able to make a huge difference.
If you care about raising awareness as much as I do, here are a few ways you can help:
1. Sign the petition here: http://www.ipetitions.com/petition/thumbelina/
2. Share the petition with your friends! Facebook it, youtube it, blog it, whatever!
3. Tweet this: “MICHELA ANDERSON AS THUMBELINA! #onceuponatime #michelaisthumbelina @michelasings @AdamHorowitzLA @jollychan4”
4. Join the facebook page! “Michela Anderson as Thumbelina on ABC’s Once Upon a Time”