Posted: June 14th, 2011 | Author: Editor Steph | Filed under: Support | Tags: Facebook, Support Group, Teens and Adults with Russell Silver Syndrome | No Comments »
Teens and Adults with Russell Silver Syndrome (TARSS) is an independent support group on Facebook. With over 50 members and growing, the group is great for sharing information, advice and tips on living with the syndrome.
If you know someone with RSS who would benefit from joining the group, please share the group’s link below.
Posted: June 1st, 2011 | Author: Editor Steph | Filed under: Support | Tags: Child Growth Foundation, MAGIC Foundation, RSS, Russell Silver Syndrome, Support | No Comments »
If you are looking for support or would like to meet others with RSS, you have the chance by joining one of the conventions in either the United States and the UK.
United States
MAGIC Foundation – Adults Convention
is on from 10th to 12th June 2011 at the Marriott O’Hare Hotel in Illinois
A Russell Silver Syndrome division is not included as part of the adult programme, however MAGIC is willing to support the creation/attendance of such group, but need expressions of interest first. Please contact the MAGIC Foundation or Kim on the TARSS Facebook group in in the first instance.
Download the adult convention programme book » (PDF)
MAGIC Foundation – Children’s Convention
is on from 14th to 17th July 2011 at Westin Yorktown in Lombard, Illinois.
A chance for parents with children with Russell Silver Syndrome to meet other parents facing the same issues.
People with Russell Silver Syndrome are also welcome. MAGIC will try and arrange seminars and events for people who wish to attend.
MAGIC Foundation website »
With both conventions, you need to make sure you are a paid member.
United Kingdom
Child Growth Foundation
5th November 2011 in Northampton
The UK’s version of a growth convention for parents with children with various growth conditions, including Russell Silver Syndrome.
RSS Adults/Teens
Depending on numbers of RSS teens/adults attending, seminars etc will be arranged. Further details/information to follow as convention details are made, anyone wishing to attend should ensure they are current members of the CGF.
Contact the CGF for more details or talk to Kim on the TARSS Facebook group.
